Tuesday, July 22, 2014

Triumph in the midst of the storm

Last night Tobiah was having a really hard time. I think he was over tired and his blood sugar may have been off a bit, but he had been told he needed to clean his room before he could come out after Rich got home. This escalated to one of the huge screaming, kicking, banging, throwing things tantrums, so we calmly went about it in our normal way, taking a stuffy away every time we had to remind him not to stomp, kick the wall, or throw things, talking to him calmly, reminding him to take deep breaths, and so on. After about 30 minutes, he was FINALLY mostly calm and doing an amazing job cleaning his room. Then Elli came along... She very meanly and snottily said "we're having applesauce", just to be a jerk to him and upset him. I have to say though, Tobiah shocked me. He paused for a second, then said (granted in an equally snotty tone) "well I can have some when I am done, and I'm almost done anyway!" When questioned exactly what had been said to him (I only heard his response, but given what he said and how he said it I am certain he was being truthful), he also said that what Elli had said had really upset him and made him angry.


I am flat out amazed with my son. This is my boy who has a hard time regulating emotions, and often has a hard time expressing himself. He was only maybe 20 minutes out from one of his all out huge, out of control, not coping at all tantrums, but he did not take Elli's bate and get all worked up again. He kept calm, held onto the knowledge that if he did what he was supposed to he would get his applesauce like the girls had, and told Elli off. He handled it better than I've ever seen him handle a hard situation like that. I'm so impressed, so proud, and so amazed. I'm also full of hope that we are getting somewhere, and now have something big to remember in the midst of his tantrums. My boy will overcome, he will learn to cope with emotions, and he will succeed in life.


For the record, Elli got in a good amount of trouble for antagonizing her little brother and for the next week will be learning about serving others through cleaning his room for him daily. Hopefully she will not only think twice before being mean again, but will learn something about what it means to serve and love our brothers and sisters instead of leading them to stumble and sin.

Friday, July 4, 2014

Life with autism is...

...letting your child come in the bathroom, when you just got woken up by a loud firework, are having contractions, and really just want SPACE, and letting her sing you the ABCs, because she wants to "show you something", and letting her get closer and closer to you as she sings until she is almost touching you (remember you're still on the toilet), and then excitedly telling her how amazing she did when she is done, because, well, you love her, and these silly moments are what make her so amazing and special. And the part that is truly life with autism? You don't have to fake it. You truly do love it. You live for these special times with your child, you focus on them when she is staring at you blankly not recognizing what is going on because she's just too overwhelmed. You hold them in your heart when she is screaming because her favorite dress is dirty and she just cannot wear it for another day. You store them up for all the times it hurts, it is hard, and it is scary, because it reminds you that while autism brings many challenges, it brings more beauty.